I’m glad to see more celebrities and other newsmakers talking about their struggles with infertility. I also want to give a shout out to all the people across the country who organize and lead local infertility and pregnancy loss support groups. When we were in the throes of trying (and failing) to conceive, there wasn’t a formal group in our area, and I felt its absence. I longed to connect with other women who knew firsthand the monthly ups and downs of the process, gals who shared my obsession with at-home pregnancy tests, and ladies who understood the shame and guilt I felt because my body wasn’t doing what it was supposed to do. I came to understand why community is so important for people struggling with this medical challenge.
1. You need understanding, not crappy advice.
Ever shared your infertility journey with someone who just didn’t get it? Sure, they might try to comfort you with some sage advice like, “Stop trying so hard!” or “Go adopt a baby from Africa. Then you’ll get pregnant!”
What you really need are co-conspirators who can help you survive the two week wait or can tell you which filters make even the faintest positive lines on a pregnancy test show up. Online communities are a great place for these kinds of relationships. These message boards are full of women who are in the same boat as you, and would send their old pee sticks by the truckloads to anyone who suggests relaxation is the key to overcoming infertility.
2. You need mentors.
It helps to connect with people who are farther along on their journey. They have valuable advice that they’ve gleaned from their experiences. For example, it helps to hear when others have decided to move from trying in utero insemination to in vitro fertilization. If your doctor suggests a course of treatment that sounds new to you, ask your infertility support group if they know anything about it. Of course, you should always feel comfortable asking your doctor medical questions…but sometimes, it’s helpful to also draw on the collective wisdom of the BTDT ladies. (That’s Been There Done That for all your fertiles out there.)
3. You need permission to treat yourself right.
Sometimes, you need an ugly cry because you just found out your ovaries didn’t produce enough eggs for your upcoming IVF cycle. Sometimes, you need to go see a mindless action movie and gorge on popcorn. Sometimes, you just need to rant and rage against the world because it’s not fair that you can’t conceive but the neighbor’s cousin’s dentist’s assistant just got pregnant after a one-night stand. Being in a support group with other people who are going through infertility allows you to understand that there are many appropriate and healthy ways to cope with your emotions.
In what ways has being in community with other people experiencing infertility helped you?
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